MANAGING PARKINSON'S DISEASE AT EVERY STAGE
Patient Resources
In this section you'll find useful information and resources about Parkinson's disease. There are Web links to a wide range of organizations below. These can help put you in touch with self-help, advocacy, and support groups whose members share your issues and concerns.
There are also some downloads with information for you, your family, or friends.
You may also want to peruse the glossary for words or terminology that is new to you.
The following is a list of links to some of the most well-known associations and other private and government-sponsored organizations dedicated to Parkinson's disease. These Web links are organized for patients. For care partner resources, click here.
American Parkinson's Disease Association
(www.apdaparkinson.org)
The American Parkinson Disease Association seeks to “Ease the burden and find the cure” for PD through research, patient and family support and education. The site offers information about PD, publications, information on chapter locations and current events and has a research program that funds research grants. Information and referral centers are located throughout the US. To find the center nearest to you, call 1-800-223-2732.
The Michael J. Fox Foundation for Parkinson's Research
(www.michaeljfox.org)
Actor Michael J. Fox, who has PD, started this group to drive high-impact research toward a cure for PD. The site offers up-to-date information about research, news, and events.
National Parkinson Foundation
(www.parkinson.org)
The National Parkinson Foundation (NPF) is the largest and oldest national Parkinson foundation in the United States. NPF supports Parkinson-related research, patient care, education, training, and outreach. NPF Chapters and Centers work with hundreds of people in support groups throughout the United States, Puerto Rico, and the Bahamas. The site offers features such as Ask the Doctor, Ask the Surgeon, and Ask the Parkinson Dietitian.
Parkinson's Action Network (PAN)
(www.parkinsonsaction.org)
PAN is the unified voice of the Parkinson's disease community–advocating for more than one million Americans and their families; their site provides updates on all public policy issues affecting the Parkinson's community.
Parkinson's Disease Foundation
(www.pdf.org)
The Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, education, and public advocacy. PDF funds promising scientific research and supports people with Parkinson's, their families, and caregivers through educational programs and support services. The organization provides information and referrals to patients and caregivers through an online “Ask the Expert” service, toll-free helpline, Web site and educational publications.
Parkinson's Unity Walk
(www.unitywalk.org)
The Parkinson's Unity Walk is an event held in New York City each year to increase public awareness about Parkinson's disease and raise funds for research.
The Parkinson Alliance (PA)
(www.parkinsonalliance.net)
The Parkinson Alliance is a national nonprofit organization dedicated to raising funds to help finance Parkinson's disease research. The site includes news, information on research and events, and links to other related sites.
WE MOVE™ Worldwide Education and Awareness for Movement Disorders
(www.wemove.org)
One of the Internet's most comprehensive resources for movement disorder information and the hub of movement disorder activities on the Web. The site's mission is to increase awareness of neurological movement disorders and to make early diagnosis, up-to-date treatment, and patient support a reality for all people living with movement disorders.
Young Parkinson's Information and Referral Center
(www.youngparkinsons.org)
The APDA National Young Onset Center is the nation's first free-standing Center specifically created to serve the needs of the young onset patient. Founded by the American Parkinson Disease Association, Inc., the APDA National Young Onset Center is a source of information and supportive resources for issues particular to those having Parkinson's disease at a young age.
